Charles in Charge

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Making Progress!

After a slow first two weeks, Charlie made some great progress this weekend.  He’s been eating about half of his food orally, and he has to eat all of it orally before he can go home.  He would take a feeding or two from a bottle, and then be too tired for the next one and take that meal through his tube.

Starting at 5am on Saturday, he has taken every meal orally.  He eats every 3 hours, so that’s a lot of meals!

To be discharged, he needs to continue eating orally, and outgrow his acid reflux spells which can dip his heart-rate and breathing too low.  He also has to maintain his temperature, which he’s very close to doing.

He doesn’t have a target weight for discharge, but he’s started putting weight back on and he’s up to 4lbs, 5 ounces, which they are thrilled with considering he got down to 3lbs 8oz after birth.

It’s still early to say when he’ll be home – I’ve been saying “2 more weeks” for 2 weeks now, so I’ll stop saying that.  But he’s finally showing some progress, which is what we need to start gauging when he’ll come home.  If we can continue this progress for a few more days, we might get a better picture of when he can come home.

Thanks to all of our family and friends for the cards, flowers, meals, phone calls, texts and well wishes.  We can’t wait for all of you to meet Charlie!

-Scott, Anne and Charlie

Sleeping in my fort

Sleeping in my fort

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4 Responses to “Making Progress!”

  • JoAnn says:

    Charlie is so very precious. We know how much you must want to take him home, Our thoughts, prayers and love are with you.

  • suzanne stevens says:

    Thanks for the update. Such good news- hopefully he’ll be coming home around his due date. How wonderful for all the good care. I only wish his delivery was easier for all of you. Hang in there- you’re all doing a great job! It’s certainly a time to let your family and friends help you. I will continue to keep Charles in my prayers, and hopefully, soon you’ll have true Easter joy!

    Mrs. Stevens

  • Mimi says:

    Go Charlie, GO!. You have made such amazing progress over the past few days. Keep it up and you will home with Mommy and Daddy real soon. Love you!

  • Deb Gaimari says:

    so glad to read of all the positive progress :)) I’m sure you’re all very anxious to get home..hopefully it won’t be long now! love your pics Scott and thanks for sharing them ~ not only does it bring back many wonderful memories, but it also saves me from having to pester your mom for updates all the time xoxo

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